Frequently asked question: How are sickle cell patients counseled and supported?

Sickle cell disease may also lead to social and emotional problems, as well as behavioral problems. To deal with these kinds of problems, a social worker and a (pediatric) psychologist may be involved in the treatment. Early identification and support, as well as getting the school actively involved, are very important. Absence from school due to frequent hospital admissions or check-ups must be avoided as much as possible.

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What organ-related problems can sickle cell disease cause?

Brain: after some time, sickle cell disease can lead to a narrowing of the blood vessels in the brain. If this leads to…

Why are regular check-ups so important with sickle cell disease?

Some physical problems come on in the very short term, while others take some time to occur, often in different organs. …

What are common symptoms of sickle cell disease?

Anemia: symptoms depend on the extent of the anemia. Common symptoms include tiredness, feeling weak, shortness of brea…

How does sickle cell disease affect pregnancy?

How are pain and other symptoms treated?

Can you tell beforehand how sickle cell disease will develop in a specific case?

How is the formation of sickle cells triggered?

Does every sickle cell patient get the same symptoms and with the same level of severity?

Why do children under the age of 12 with sickle cell disease take antibiotics?

How does sickle cell disease lead to pulmonary hypertension?

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Treatment of sickle cell disease; prevention, treatment, and support

Does eating acidic vegetables help against sickle cell disease?

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How are sickle cell patients counseled and supported?

What can you do yourself? What are the possible health measures?

What check-ups will be done?

What does a healthy lifestyle for a sickle cell patient look like?

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What is the treatment for sickle cell disease?

Which vaccinations are important for sickle cell patients?

Why are regular check-ups so important with sickle cell disease?

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General

Medication and sickle cell disease

Occurrence of sickle cell disease

Sickle cell disease and pregnancy

Sickle cell disease symptoms and problems

The hereditary nature of sickle cell disease

The problem with hemoglobin S

The role and structure of hemoglobin

The sickle cell disease diagnosis

Traveling with sickle cell disease

Treatment of severe sickle cell disease

Treatment of sickle cell disease; prevention, treatment, and support